Brian and Steve (BS) take on the Ice Bucket Challenge. Love. 🧊❤️🪣 @stevegleasonofficial #cj2k #als #alsawareness #lougehrigsdisease #onwardforward
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Brian and Steve (BS) take on the Ice Bucket Challenge. Love. 🧊❤️🪣 @stevegleasonofficial #cj2k #als #alsawareness #lougehrigsdisease #onwardforward
1.4M views2 months ago
TikTokbrianjeansonne
Steve Gleason & Brian Jeansonne Take the ALS Ice Bucket Challenge for Chris Johnson
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Steve Gleason & Brian Jeansonne Take the ALS Ice Bucket Challenge for Chris Johnson
2.1K views2 months ago
YouTubeMoore Insight
@stevegleasonofficial | Brian Jeansonne
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@stevegleasonofficial | Brian Jeansonne
88.7K viewsAug 18, 2025
FacebookBrian Jeansonne
The Moth Presents: Brian Jeansonne | Finding Beauty and Love in the Chaos | NYC Mainstage 2024
11:57
The Moth Presents: Brian Jeansonne | Finding Beauty and Love in the Chaos | NYC Mainstage 2024
5.6K viewsOct 1, 2024
YouTubeThe Moth
See yall there! Thank you so much for watching our video
3:31
See yall there! Thank you so much for watching our video
1 day ago
YouTubeBrian_Jeansonne Family
The Moth Presents: Brian Jeansonne | Finding Beauty and Love in the Chaos
11:40
The Moth Presents: Brian Jeansonne | Finding Beauty and Love in the Chaos
1.2M viewsOct 1, 2024
FacebookThe Moth
Check out Onward Forward endorsements! Thank you @alanis @stevegleasonofficial @brunchbossnola Dr. David Gushee @juliestokescpa @stephenkantrow @hixsonjenifer @thejeansonne7 | Brian Jeansonne
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Check out Onward Forward endorsements! Thank you @alanis @stevegleasonofficial @brunchbossnola Dr. David Gushee @juliestokescpa @stephenkantrow @hixsonjenifer @thejeansonne7 | Brian Jeansonne
7.2K viewsOct 7, 2024
FacebookBrian Jeansonne
5:28
It’s how he starts every single day once he’s in his chair
3 views3 days ago
YouTubeBrian_Jeansonne Family
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Q&A with Brian Q: What do you miss most? love. - - - - - - - - 📆Coming Sept. 2024: Onward.Forward. By B. Jeansonne #BrianJeansonne #thejeansonne7 #ALSawareness #ALS #lougehrigsdisease
228.8K viewsAug 22, 2024
TikTokbrianjeansonne
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Two years into my ALS diagnosis, Kristy and I faced a major breakdown. We hadn’t had physical intimacy in months, and I felt lonely and unattractive. After eighteen years of marriage, this was new territory. Kristy was exhausted, and our needs differed. We cried together, expressing how ALS was straining our bond. I told her she could let the disease take me, but she reassured me with love, saying, “You better not tap out because there’s no one I’d rather spend my time with than you.” ALS is cha
164.2K viewsJun 30, 2024
FacebookBrian Jeansonne
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Our journey with ALS has been filled with incredible community support and resilience. From countless meals to a fully funded van, generosity has surrounded us. Despite challenges, the love and kindness of those around us have kept our spirits strong. The outdoors became my sanctuary, whether at my favorite coffee shop, under the oaks, or on my neighbor’s porch. The first year of ALS was a whirlwind for us in every way—physically, spiritually, emotionally, mentally, vocationally, and socially. l
74.7K viewsJun 28, 2024
FacebookBrian Jeansonne
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Stupid game #als #onwardforward #challenge #thejeansonne7 #trend | Brian Jeansonne
71.9K views9 months ago
FacebookBrian Jeansonne
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ALS Awareness Month, I wanted to share a moment that truly embodies the power of family and resilience. When my leg gave out and running was no longer an option, I found solace in swimming. That final swim, where I surrendered myself entirely to their support, remains etched in my memory forever. Let's keep spreading awareness and supporting each other through life's currents. - - - - - Q&A coming soon... What questions do YOU have for Brian or his family?Comment below.☑️Follow☑️Like☑️Share☑️Sav
49.9K viewsMay 4, 2024
FacebookBrian Jeansonne
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Life changed drastically when ALS hit, just as Covid had already upended our social world. That first year was isolating—nights spent on the porch, questioning everything. But from that struggle, we found unexpected strength and closeness. Our family, #thejeansonne7, grew into a force of love, proving that beauty can rise from the ashes. love. #OnwardForward #brianjeansonne #Blove414 #thejeansonne7 #theJ7 #ALSawareness #LivingWithALS #ALSsupport #MotorNeuronDisease #LouGehrigsDisease #ALS | Bria
39.3K viewsJun 11, 2024
FacebookBrian Jeansonne
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Last night, my friend Steve won the Arthur Ashe ESPY for courage. In his acceptance speech, Steve said: “My view is that the fears and adversities we encounter are our opportunity to accept what is and explore what is on the other side of fear, to grow stronger, better, and have peace of mind. From this perspective, resiliently moving through the adversities Life brings us is our purpose in Being human.” I am grateful for my friend’s resiliency as I believe in many ways it is why I am still aliv
35.6K viewsJul 12, 2024
FacebookBrian Jeansonne
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Exploring caves mirrors the journey of the soul: dangerous yet invigorating, thrilling yet worth every moment. Just like stalagmites and stalactites deep below the surface, our souls hold mysteries waiting to be discovered. love. - - - - - - - - 📖 Onward. Forward., Chapter 4 📆Coming Sept. 2024: Onward.Forward. By B. Jeansonne #Blove414 #BrianJeansonne #thejeansonne7 #ALSawareness #soulcare #MotorNeuronDisease #LivingWithALS #ALSsupport #ALSCommunity #ALSJourney #ALSFamily #ALS | Brian Jeansonn
30.6K viewsJul 9, 2024
FacebookBrian Jeansonne
3:54
AI and speech technologies
22.1K viewsMar 7, 2024
YouTubeMSFTEnable
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APRIL IS THE MONTH OF DIAGNOSIS. Four years ago, we sat in silence while a doctor told us: “This is ALS. I’m so sorry.” The world cracked open. And something new began. This month on The Porch, we’re reading “On Suffering.” Because pain changed everything—but it didn’t destroy us. It invited us deeper. Not to fix it. Not to fear it. But to face it. And maybe—just maybe—to love it. The Porch with Brian Jeansonne is our Substack space for reflection, presence, and soul work. Free subscribers get t
5.3K viewsMar 30, 2025
FacebookBrian Jeansonne
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Due to my computer crashing, I was left without a way to communicate my needs to Kristy. So, we dis what we do! we dug deep into our bag of tricks from over the past 5 years, and decided to give the call button another shot. Surprisingly, I discovered I can still move my head! Thankfully, after two challenging days, @teamgleason came through for me with a loaner device. I’m so thankful. love. https://givebutter.com/theJ72025 - - - - - - - - Onward. Forward: https://www.amazon.com/dp/1961624893 #
3.6K viewsApr 26, 2025
FacebookBrian Jeansonne
2:22
Celebrating a life beyond ALS diagnosis
1.1K views3 months ago
YouTubeInvestigateTV
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This is my friend Steve. He has had ALS for 13 years. As you can see, we look nothing alike, but that doesn’t stop people from often thinking that I am him. So, I introduce myself as either his bodyguard or his stunt double. Steve’s book comes out tomorrow, and if you only read one book this year, you should read Steve’s. But if you read two books this year, mine will release in September. love. #Blove414 #BrianJeansonne #ALSawareness #LouGehrigsDisease #MotorNeuronDisease #LivingWithALS #ALSsup
1K viewsApr 29, 2024
FacebookBrian Jeansonne
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How do you even begin to express the emotional weight of such a diagnosis? The first few months felt like drowning. But amidst the tears and confusion, there were incredible moments of peace, joy, and love. We decided to live in the present, embracing each day with all its feelings. love. #LiveInTheMoment #OnwardForward #brianjeansonne #Blove414 #thejeansonne7 #theJ7 #ALSawareness #LivingWithALS #ALSsupport #MotorNeuronDisease #LouGehrigsDisease #ALS | Brian Jeansonne
695 viewsJun 21, 2024
FacebookBrian Jeansonne
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Progressing Through ALS: A Personal Journey
249.8K viewsJun 29, 2024
TikTokbrianjeansonne
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It’s Father’s Day. And tomorrow, Brian will show up as he always has—dad, husband, storyteller, truth-teller. If you’ve ever wondered how to live fully in a body that’s breaking down… or how to love fiercely even when life is unfair… come sit on the porch. 🗓 Monday, June 16 📍 Barrel Proof, NOLA | 4–6PM | FREE 🎤 Inspirational storytelling Q&A 💬 No questions off limits. love. - - - - - - - - Onward. Forward: https://www.amazon.com/dp/1961624893 #BrianJeansonne #thejeansonne7 #ALSawareness #ALS
214K viewsJun 16, 2025
TikTokbrianjeansonne
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Whole lotta love @nathanjeansonne @thebelovestudio #als #thejeansonne7 #onwardforward #motorneurondisease #brianjeansonne | Brian Jeansonne
174.4K views8 months ago
FacebookBrian Jeansonne
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Jazz Fest🎺🎶 Getting Brian to the party is a team effort, but the fun we have makes it all worth it! Living life to the fullest with ALS - this is how we roll! - - - - - What is your favorite music fest? Comment below! ☑️Follow ☑️Like ☑️Share ☑️Save #Blove414 #BrianJeansonne #ALSawareness #LouGehrigsDisease #MotorNeuronDisease #LivingWithALS #ALSsupport #ALSCommunity #ALSJourney #ALSFamily #ALS #OnwardForward #JazzFest2024 | Brian Jeansonne
13.2K viewsMay 6, 2024
FacebookBrian Jeansonne
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#als #ericdane #love #onward #alsawareness | Brian Jeansonne
155.1K views7 months ago
FacebookBrian Jeansonne
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Seeing Steve Gleason introduce me at the launch of ‘Onward. Forward.’ was a moment I’ll never forget. To have someone I respect so deeply stand by my work, my story, and my family’s journey with ALS—it’s an honor beyond words. Steve has been a mentor, a friend, and a reminder that purpose and love can transcend even the toughest of battles. His endorsement of my book isn’t just support; it’s a shared commitment to living fully, no matter the obstacles. Thank you, Steve, for walking this path wit
6.1K viewsNov 11, 2024
FacebookBrian Jeansonne
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Embracing creativity and collaboration against all odds! Despite ALS taking away my ability to write by hand, technology has empowered me to type over 83,000 words using just my eyes. The journey of crafting Onward. Forward. has been a true testament to the power of teamwork. Inspired by the legendary Inklings, we formed our own creative circle to fuel our passion for storytelling. Cheers to the tireless hours, the editing, deleting, adding, and most importantly, the fresh ideas that created Onw
11.6K viewsOct 9, 2024
FacebookBrian Jeansonne
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ALS may have taken my voice, but 20 years of marriage, you just know what the other is trying to say. Can you guess the silent signal: What am I asking Kristy to do while she showers me? It took her a few minutes to figure it out but then she busted out laughing. We have to keep laughing. love. - - - - - - - - 📆Coming Sept. 2024: Onward.Forward. By B. Jeansonne #BrianJeansonne #thejeansonne7 #ALSawareness #ALS #lougehrigsdisease #terminalillness | Brian Jeansonne
747.9K viewsJul 26, 2024
FacebookBrian Jeansonne
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